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heatherlarson
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My bio is long because it's Nostr and I can 🤷‍♀️ Pleb. Stacker. Yoga teacher 🧘 New to Nostr & a content creator? Check out resources: https://nostr-creators.shakespeare.wtf/ 🎭 Shakespeare by Soapbox: https://shakespeare.diy/ Shakespeare made my portfolio: https://heatherlarson.shakespeare.wtf/ 🆕 Trying to reign in Derek on Soapbox Sessions! 😉 Listen wherever you get your podcasts, YouTube, and on this podcasting app he built using MKStack: https://sessions.soapbox.pub/ 🕉️ #yogastr = I teach yoga class for nostriches! On Hivetalk! 🎧 🎙️ Chief Detox Officer at #RadioDetox: https://fountain.fm/show/IgdKDWtHpDc67T0wqqoO 💼 Working with: Soapbox & RUNSTR. #OtherStuff maxi. ⚡️ heatherlarson@fountain.fm 🎶 Short songs are so fiat. MAKE SONGS LONGER! 📻 Talked about sobriety on #Plebchain Radio (sober since 7-1-13): https://www.fountain.fm/episode/hcpRRhQ6AwkEJi7uL89r ✍️ I write a lot of stuff too 😉 Like this: https://www.nostrphx.com/blog/culture-shock-pura-vida-in-the-desertnbsp https://zine.wavlake.com/how-to-discover-music-on-wavlake/ I don’t know Jack Dorsey and even if I did I don’t care 🤷‍♀️ don’t ask me about him ya weirdo 💀

I caught a shirt!

Here’s what she tells me 🤣 „you took me to see Violent Femmes at the Filmore, and I though you were taking me to see some Lilith Fair sh*t.”

28 years of friendship

28 years into this friendship, I am still early and she is still always late 🤣

🤣 everyone is giving me 💩 because it’s the first 100-degree day in Phoenix and I’m not there 🤣

Like I planned it 🤣

I’m playing the hot and cold while walking around SF game

I don’t think you can spend all day in a medical research facility without becoming absolutely fascinated and enamored with your own health.

I’ve been a Guinea pig at UCSF since 2012. It helps me feel like I’m doing something to help and I get to play adult science camp. I get to meet and talk to people who teach me things I won’t ever learn from reading books.

There’s something to be said for being able to hold a conversation about prion disease, just being able to riff.

But many people are there in the building for HELP. They got there because they self-advocated to get help. They fought the medical system and won—ratcheting up their issue to a research hospital. Not everyone makes it to that point. Some suffer, many die.

I’ve fight hard for my health simply because it is good for the research. I’ve said all these years we don’t win if I die, we don’t win if we don’t get answers about any stupid health problem I have.

I never let doctors slap an rx on me and call things done. I make them work. Remember, your doctor is your employee. They work for YOU.

Seeing people in various stages of various Neuro diseases (MS, for example) is humbling. Those people are heroes. They are fighters. My respect to anyone who is entering a clinical trial or research study while symptomatic.

It takes so much faith and hope to do this stuff. I am very optimistic.

#CURECJD

The work for today is done. Now I enjoy mah hometown roots!

Motor testing. Mostly collecting more data points here between the USA and the Germans who started this.

And oddly enough wearing my tech bro InfluxData socks for the job…

There are no coincidences!

Why? Because we think motor skills could lead someday to a diagnosis. Somehow, someone will come up with a way to do a clinical diagnosis.

I’ve done this one before in 2012. Still doing it.

#CURECJD

Do prions start misfolding in the brain or on the skin? Two different theories.

#CURECJD

Where else can you talk about DNA and ASOs and gene silencing with fellow dorks?

#CURECJD

I still love this city and its pockets of hot and cold… 🤣

Walk down 1 street, freezing. Turn the corner, hot! 🥵

Unrelated: the homie here today running things went to the same high school I did.

Such a small world 🌎

Finished cognitive testing half an hour early.

The 🧠 still works

Science meets art

#artstr

Things I learned today… so far

✅ I forget names and it’s normal because those are labels and not important to remember. Literally sorry to all of you I did this to af the halving party last week.

✅ you only have to lose 15% of your weight to improve sleep apnea. It’s not that much.

There’s more but my phone is gonna die

#CURECJD