I called the Cleveland Clinic today and got that process started. 4-6 months.
I actually went a couple years ago. I knew what I had, but the symptoms didn't result in any findings and I wasn't in bad enough shape for anyone to care. Sure, I reported a crazy history but nothing is bad enough right now, was basically the outcome.
I've been taking life a few days at a time for a long, long time.
BTW: I'm logging all this for science and because it's actually very fascinating to have lived through. I've made it seem normal most of the time, but the overall story is fascinating. I think it helps to find your own life fascinating even it's not your best case scenario. I found 3 decades by putting myself through this. That seems like science worth examining.