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"Now that I’m living with #chronicillness, I have to put serious consideration into much of what I choose to do throughout the day because it will have an immediate effect on Current Leslie, as well as risk having an impact on Future Leslie."

#chroniclife #Spoonielife #Spoonie nostr:npub1x4n527e2rutv77w70tzjqkdw8quhvagcpjyqxump6nv2crfwhdwqx57h77 nostr:npub1qny4s7gyr3z7t9c8lzjk3qm69mk9nwanknwyznex4l344fp4lmmqkny0sg nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22

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Discussion

4/

"On the days that I decide I don’t have the recovery time or overall energy to take a shower, I give myself a baby wipe bath (which is just wiping myself down with a bunch of baby wipes), apply dry shampoo to my hair, and throw a little cold water on my face."

nostr:npub1x4n527e2rutv77w70tzjqkdw8quhvagcpjyqxump6nv2crfwhdwqx57h77 nostr:npub1qny4s7gyr3z7t9c8lzjk3qm69mk9nwanknwyznex4l344fp4lmmqkny0sg nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

I am forever classing myself as a separate entity. But you are completely correct. The spoon method is the easiest way of describing. Fortunately, or unfortunately, it’s impossible to understand until you are the one unable to move from your bed, get in the shower/bath, eat.. it’s a daily battle. I appreciate you for trying, it’s all we can do 🫶🏼✨💖