Well, it was the small chance of bilateral blindness that was terrifying.

We were willing to tell the famous docs that we were going to a less known children’s hospital for newer and therefore less well tested care. But the totally obvious superiority of propranolol clearly didn’t have double blind placebo controlled proof…a good example of “proof” not being necessary when obvious.

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OMG that must have been so difficult! hope your baby is ok now 🙏🏻

She is fine. $100,000 in medical charges, most of which I realize now was total bullshit, which cost me just shy of $15,000 due to in and out of network charges for three insurance plan-years in an 8 month span (…doctor years start July 1 and generally don’t do internship at the same institution as radiology residency)…

Today she’s beautiful, sees great from both eyes, and just turned 12 on a family trip to Israel this past summer.

I’d be about 100 btc richer had it not been for being fleeced by my future peers as a poor resident, but I wasn’t so stupid as to part with all my mined coin…

Consider it well spent 🫂💜

It’s about $2.8M per eyeball saved. Worth it to me but unrealistic for many.

Happy that your child can see, what difficult thing to go through. My heart goes out to you