Subnostr

yeah, that sounds rough...

but i know as someone who recently started to lose some of my vision and have fortunately recovered most of it already after 3 months intensive effort, that once you can't read the damn small text on labels of these things it starts to become a bit of a pain...

i am hoping that i can find some way to also recover my close focus, i am not sure yet if it is neuromuscular or if my lenses are getting harder and can't do that shit but i'm still clearing out the neuromuscular part so i think it's probable that i can still read that shit, just need to put it a little further away

i honestly don't know how much of what is what with anybody's problem without testing out some of the things i know that i identified that made it clear i was suffering from a neuromuscular problem but it's a simple fact that optic lenses do get less flexible as we get older, i just refuse to give in to it so i keep fighting to figure it out because it doesn't just affect my sight, it affects my whole life, my movement, my senses, my hearing

and i'm absolutely furious and salty as the deep sea about how it got to be like this and it makes me also sympathise with those who have other kinds of nerve, optical, hearing, movement and other disorders, and always makes me wonder how much you can reclaim still and what parts are permanent or pretty much permanent

Ingwie Phoenix (aka. birb) 2y ago

Unfortunately for me, my visual impairment is irrepairable as the vision nerve behind the eye is damaged, which at current, and since 20+ years, has been counted as unable to be repaired. So, what I lost, is lost.

The same goes for most of my friends - I grew up among visually impaired and blind people and some had additional impairments stacked on top as well; so effectively, this is the "normal" I know. x) Most of them will never recover their vision, some of them can be sure to keep their current level indefinitively, but some also know that it can only get worse; and as it stands, this is the camp I find myself in. Although I have implants in both of my eyes, if they fail, I am in severe, actual, grave danger immediately.

I am happy to read you were able to recover a good chunk of your vision! That's great news. :) I hope for you that the rest is recoverable too. But even if not, getting used to a slightly different feeling of distance and getting accustomed to a bit of new "technique" to get things done is really not that hard; in the end, you can still see, and that is what matters. The rest? Just oldschool learning and self-teaching. ^^ Totes manageable.

Good luck! ^_^

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ᴛʜᴇ ᴅᴇᴀᴛʜ ᴏꜰ ᴍʟᴇᴋᴜ 2y ago

yeah, most people lose their first few inches of focus at least as they get to my age so that is ok, my eyes are still sharp enough, the neuromuscular problem is not entirely gone, it comes and goes, i find my vision gets sharper in the morning after coffee so i suppose that anything that boosts the signal power improves it

it isn't just my eye muscles though, it's my entire musculature... and it's been really rough having it all fall apart like this at the same time as trying to get acclimated to intensive hill climbing and descent here on Madeira

i like to think that in our lifetime, by some way, a lot of us will be able to have such things as damaged optic nerves get regenerated, not this implant shit, that is such a poor second best

all of our bodies can be persuaded to regrow with the right intervention... not something to hang on for but something that i genuinely believe will happen in the near future

the people who control the world currently spend all their money on medical technology research that is quite morbid, frankenstein, cyborg, all creatures of nightmare, they are sick people