I’m slowly falling down the nostr rabbit hole…check this out:
Discussion
Nip 82 terrible idea
82?
Hey 🙂 Sorry for hell thread. Proposed NIP called: “NIP-82 Medical Data. Interested to hear your professional thoughts.
#[3] #[4] #[5] #[6] #[7] #[8] #[9] #[10] #[11] #[12] #[13] #[14] #[15] #[16] #[17] #[18] #docchain
First conversation we had about it.
note1dm7jw09w43wwhsne7qrglpgmlvgeqcenvef2nz73c9hnh78agq2sgreffw
Thanks for sharing history on this nip #[18] missed that prior discussion
In my field we get traumas and other emergencies. Many times the patient comes in unconscious, no identifying information, and or no known past medical history. Usually a PMH is useful when dealing with an emergency. Being able to download that info to our servers could help save lives.
This obviously has to be balanced with patient privacy and autonomy which is why the patient should actively manage what is shareable, but that should be able to be overridden for emergencies. Anytime there is an override, there needs to be a time stamp and documentation as to why it was overridden.
Read, provide thoughts pls
I’ve been down this road about a decade ago. The two main issues boil down to permission slips and where data gets stored. Distributed storage means permission slips are irrevocable. Revocable permission slips require centralized storage.
Permission slips tend to be handled via face machines, scanned paper documents, etc in medicine today with centralized disparate databases.
I’ll interpret that as, ya agree w me, it’s bad idea
I don’t see this as solving a problem…but as a way to liberate money from stupid VC types, it has worked to some effect in the past.
Could ya explain further. Not familiar with usa health records. Nostr not private, not even slightly. Isn’t there massive privacy issues at stake with such an endeavour?
Documenting permission to share a patients medical record with other treating physicians is explicitly NOT required by law (called the HIPPAA act). But most places make people fill out forms granting permission to share data with treating providers anyways (because penalties are massive for sharing with non-treating folks).
Somehow people want to shoehorn data transfer and permission slips together into something bitcoin-ish…but the walled garden model is incentivized by the penalties built into the law.
Is Vitor aware of this??? Cause that matches his proposal of the NIP the way I read it