On a personal note, today marks 21 years since losing my mom to CJD.

At the time, I sounded the alarm about prion disese and the NPDPSC in Yahoo groups. Quickly got my hand slapped by them.

The Internet has changed a lot in 21 years. I cannot be censored now on Nostr, and you can imagine I did NOT go quietly from the discussion at the time.

I have, to this day, always done my part in trying to "solve" or "cure" the most insidous disease on this planet and I always will.

If I am ever "quiet" or even "silent" about prion disease in the US, it is NOT due to lack of activity or concern.

At some point, I chose to live my life. Normal. Boring. Drama-free.

If you would like to support the work that I have supported since 2012, here is the information.