Prions are terrifying. Sorry for your loss (even if it was a while ago).
On a personal note, today marks 21 years since losing my mom to CJD.
At the time, I sounded the alarm about prion disese and the NPDPSC in Yahoo groups. Quickly got my hand slapped by them.
The Internet has changed a lot in 21 years. I cannot be censored now on Nostr, and you can imagine I did NOT go quietly from the discussion at the time.
I have, to this day, always done my part in trying to "solve" or "cure" the most insidous disease on this planet and I always will.
If I am ever "quiet" or even "silent" about prion disease in the US, it is NOT due to lack of activity or concern.
At some point, I chose to live my life. Normal. Boring. Drama-free.
If you would like to support the work that I have supported since 2012, here is the information.
The work of nostr:npub1l40cx7mc8cr23qamy6xhjx4gng9wmuczj2d8ertvw98w0aak9x3qyxmh7n by nostr:npub1zvu0wuq4rf5839sangchz8h7rq6ejp22zhvn8sncwc3eaq987qds66w2ya and nostr:npub1m3xdppkd0njmrqe2ma8a6ys39zvgp5k8u22mev8xsnqp4nh80srqhqa5sf is vital for our future.
*I will NOT be responding to ANY conspiracy theory comments. Thank you.*
Discussion
Thank you 🙏🏻 while it was long ago, it was not the only loss to CJD. I’ve lost two uncles and my mom to it. Nov 12 is CJD awareness day, so I can mention again, though I’m not much of a believer in awareness campaigns.
Me neither, unless there's an impactful call to action.
Prions: even less alive than viruses, yet still "reproduce". Bad stuff.