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Replying to Avatar Patricia

Weird thing to share but maybe this will help someone. After going on what is now ten months of not knowing what has been going on with me — we determined I have an autoimmune disease. We found concrete data through blood testing with an immunologist. If you are sick and battling a ghost — just know you are not alone. Keep advocating for yourself and keep pushing through the medical system. (And get creative.) I have been told on average it takes up to two years to get diagnosis. The secret to my success was that I didn't take ‘no’ from anyone. I even had to call the hospital patient advocate hotline. One thing I learned no one will stick their neck out for you. You really have to advocate for yourself. If the doctor declines a request ask them to write it in your medical file as to why. That changes attitudes real quick.

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Bohemia 2y ago

wishing you well and glad you didnt take no for an answer 🫂 the book The Autoimmune Epidemic opened my eyes to so much i didnt know 💜

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