Wednesday, I have beaten you.
Work was meh. A current dev project is a year overdue and months from a release candidate.
Then I planted some begonias.
I have a doplar exam on my legs Friday.
GM Nostr.
Legs are very stiff, today.
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Tuesday. Will wonders never cease.
Yesterday and this morning, I was naive to think it wouldn't change again and get worse in yet a new way. That's how this thing goes. Completely undetected by "medical science" so far and yet I don't have long.
This evening, when I walk, the motion of my leg pulls things near my waist but lower tight, and I feel a light tearing there.
I'm just here to document a redacted medical condition.
It's called Terminal Onset Diabetes Insipidus. It's not part of science anymore. Makes you wonder why, right?
GM Nostr.
Feeling more hopeful than usual, this morning.
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Excellent evening at home after a pretty strong day of work. Well, most of the day.
Watching the latest Real Time with Bill Maher.
GM Nostr.
Let's see what the week brings, shall we?
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Anyone Wordle?
I usually end up forgetting to do it for a day, so this is my longest streak. It's now part of my routine.
Routines will do a lot for you, in life.
I just want to say that I'm home. There is no place I would rather be.
At this moment, I can still almost pretend like things are normal. I can hide all but the slowness of my legs. I think that's great! Anyone else with no physician diagnosis after all of this would be freaking out.
But I've seen the diagnosis in a case study and old ICD9 they've redacted from science. Some science is dangerous. The WHO decides...
I'm the only one for whom it's this real. Today. That's great, too.
Lunch. Fresh off the smoker.
GM Nostr.
I'm still here. Honestly, I feel fairly normal this morning, sitting here.
The truth is very different.
I have a redacted medical condition that is the most complex thing I've ever run across.
It's an iayrogenic condition that puts the body through phases of changes over decades with nothing that every shows up on labs or imaging. This is because the condition is centered around your pituitary taking control of the electrolyte balance in your body due to a problem with the kidneys. So, blood levels are inline, but volume changes over time.
It's a whole series of decompensatory changes that are undergone as the body slowly fails at finding other ways and places to put the electrolytes. On various phases, this impacts the heart, kidneys, liver, intestines, and more, ultimately leading to failure of the pituitary in a sudden fashion.
The decline will be profound.
Still getting out.
Main Street Tavern in Broken Arrow
GM Nostr
I'm still here.
Guys, your woman wants you to ask about her day. This is not a single question. This is a process of helping them express what they need to share but won't.
My sister is the complete opposite. She never stops talking. So, perhaps there is some variety, but it seems women all want to share and need to know you are listening and interested.
My bad.
I can still learn things at 55.
Happy news at the end.
It's amazing. Doctors can't find a thing, yet I know I'm fighting for my life.
The sheer number of issues this condition has brought upon me over the years. From days my skin was on fire to so many different types of abdominal pain and muscle pain. Throughout all the first 27 years, it never kept me from the gym or cardio for long.
Three years ago that changed overnight. Since then, it's been more frequent issues than before. Early on, the changes were a decade apart. But it's like an accelerating Rube Goldberg machine. These days, the changes come day to day. That's a system burning out, trying to compensate and loosing a little more ground each time.
I crushed work today even with a 2 hour VP downtime.. My son is here for the weekend! And I'M STILL HERE.
GM Nostr.
It's Friday. I made it to the weekend.
My son might it might not come to town from college, this weekend.
It's frankly bizarre to have a terminal medical condition that only I know is there.
Science should not be redacted.
Hey.
So, today I met with my PCP. He ordered an EMG and a doplar for my legs.
It's really all over but the legs are used so much more, plus whatever it did to my arms and shoulders in 2023, I think it's already done a lot of work there. I honestly believe it's getting worse by the hour.
Still, chalk up another day among the living.
GM Nostr.
I will be seeing my PCP for the first time in months. Given the rapidly onsetting muscle weakness in my legs, I expect we will develop some type of plan.
Don't expect them to ever find anything. This condition was redacted from science for a reason.
Kicked another day in the ass!
I'm still all here mentally, but the muscles are rapidly weakening.
I see my PCP tomorrow. Time to say, "Ok, try denying this."
I'm also looking into another diagnostic option. If I knew how long, it would make these things simpler.