Subnostr

We were very fortunate to live close to the Children’s Hospital, but several friends (funny how you bond with folks sharing your trauma) stayed there too. Fear, anxiety, helplessness. Dylan weighed 1 pound, 10 ounces at birth. Wife was only 23 weeks/6 days into pregnancy. But he fought, clawed, endured, suffered his way into survival. Brain bleeds, surgeries, transfusions, ventilators, and on and on. But, he survived. So much gratitude for those that cared for him. We had a plaque made for them a gave them on his first birthday. Surreal, 20 years ago.

🤜🏻🤛🏻

The-FewBTC 2y ago

That’s amazing. We felt strange at first in the nicu. Nearly full term babies. Healthy weight. But caught a virus are birth the led to liver failure. One twin deteriorated quickly and led to multiple organ failure with the sepsis and brain bleeds. One blood clot they couldn’t touch as it was too close to the spinal cord. We are fortunate both made it through. One is the smartest and most crazy kid I know. While his twin struggles day to day. We give him baths, change his diapers. Basically they told us he will need help for life. But am so grateful he is here. Sure we have bad days where he can’t control it, but I love the days we get happy moments. I honestly can’t imagine what you went through as I know how close we were, thank you for sharing your story 🤍

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Discussion

Mike Hall ⚡️ 2y ago

It’s funny when you talk to other NICU families. Without even sharing much, you just know. That’s an experience that has to be experienced to understand. Life really does come to a stop, and you live life moment to moment in a way you may never experience again, I call it “when life is happening to you, and your helpless to effect it”. I’m glad to meet a fellow NICU alum. It’s not something I ever really talk about 20 years later…but that one summer in 2003 the world stopped, for a few weeks, and became very simple. I know you get it, and am so glad both your twins made it. Cheers to you all.