My medical records already exist, but I feel no reason to link it to my browsing history, online preferences, etc, anything associated with my online identity. Putting it on Nostr doesn't make me own it, it just adds another copy of it, because the other pre-existing copies of my medical history still exist.
I know this is the type of thing you used to work on, but it really makes Bitcoiners nervous.
You can create a new nostr identity just for your medical records. You can link or not link. It's up to you.
I find it interesting that you said bitcoiners are nervous. This is by far the most freedom-oriented idea within health care that I know of. bitcoiners should be in full support of it, not against it.
The current system doesn't offer any freedom at all.
Vitor, kudos to you…what a moonshot! Seems like an uphill battle, that has left Google Health and Apple Health struggling to succeed. But it’s definitely a worthy problem to solve.
If you’re interested, we have a group of doctors here and we use the tag #docchain Some of us have a background in medical informatics and EMRs as well. Let me know if you’d like to get in touch, we have an active TG group.
🎯
Bring it on. I need to know if this simplistic design will work or not. Otherwise, we need to go into more complicated solutions.
Sounds good… expect an invite to the group from either #[5] or #[6]
Looking forward to helping put patients and their relationship with their physicians first 🤙
Our province here in 🇨🇦 just implemented province wide EHR for all (public funded healthcare). I find it somewhat invasive for patients.
It’s very convenient for the Docs and helps a lot clinically in many scenarios, because I can see quickly what the pts history is and that helps for care and safety. But, it is built in a way that I see more that I need sometimes (like an OD 10 yrs ago). Things that I don’t need to see if coming in for an ankle fracture… and maybe pt does not want me to see all that. Also, Nurses, pharmacist, secretaries have access with a « permit»
Just some Sunday night musings here thinking about how no one really has full privacy regarding their health now, and with these EHRs it’s getting worse, they are wanting to integrate vaccin status too 🧐
Actually, that picture you paint sounds much better than the way things are, privacy-wise. I would definitely love to see that system replace the current one.
However, I do worry about the effects of creating a too efficient system. For example, if data can be more easily shared, data may be more likely in society to be demanded, as it was during the pandemic.
Countries more comfortable with digital surveillance had stricter lockdowns and contact tracing frequently aided by technology.
Nice point. My counter argument is that visible surveillance is better than invisible surveillance. What happened during COVID has happened for years behind the scenes. It is just hidden from us.
