A decent physician should be able to communicate the rationale and level of certainty for any diagnosis & treatment regimen.
For my daughter, the recommendation was intralesional vincristine injection…the rationale for rejecting propranolol was only 2 years of global experience with the drug…we thanked them for their opinion and left for an institution with better thought’s & recommendations…albeit they fleeced us.
Luckily you understood it all, to the normal plebs like us..what the hell do we know!
The tought of your child requiring « Intralesional vincristine » must have cause many a nightmare. 🙏🏻
Well, it was the small chance of bilateral blindness that was terrifying.
We were willing to tell the famous docs that we were going to a less known children’s hospital for newer and therefore less well tested care. But the totally obvious superiority of propranolol clearly didn’t have double blind placebo controlled proof…a good example of “proof” not being necessary when obvious.
OMG that must have been so difficult! hope your baby is ok now 🙏🏻
She is fine. $100,000 in medical charges, most of which I realize now was total bullshit, which cost me just shy of $15,000 due to in and out of network charges for three insurance plan-years in an 8 month span (…doctor years start July 1 and generally don’t do internship at the same institution as radiology residency)…
Today she’s beautiful, sees great from both eyes, and just turned 12 on a family trip to Israel this past summer.
I’d be about 100 btc richer had it not been for being fleeced by my future peers as a poor resident, but I wasn’t so stupid as to part with all my mined coin…
