I don’t expect anyone to read this.

Just felt inclined to express.

Alzheimer’s is a bitch

My dad passed away six years ago this month, in his early 70s. He was the son of Lebanese immigrants and embodied that old-world work ethic: relentless, always working, and never taking time to relax. He owned a business and poured everything he had into family and work, leaving little room for hobbies or personal enjoyment.

I worked with him a lot throughout my childhood and even after graduating college. Eventually, I had to leave the family business, knowing it would destroy our already adversarial relationship if I stayed any longer.

When I was 14, Dad was diagnosed with terminal colon cancer. He went to the Mayo Clinic for surgery, endured a year of chemotherapy, and somehow survived. A couple of years later, he was diagnosed with thyroid cancer. Then, in the early 2000s, I started noticing his memory was slipping, and he was making strange decisions.

I kept telling my family, “Something’s not right with Dad,” but they refused to acknowledge it for nearly a decade.

Eventually, his dementia and Alzheimer’s became so severe that we had to close the family business and declare dad bankrupt. The entire process was an enormous pain in the ass. Shortly after, my mom sold the family house of 30 years, bought a small condo, and moved in to care for Dad.

Alzheimer’s and dementia are fked up diseases. In my dad’s case, he eventually forgot how to speak and was mostly silent for the last five years of his life. He’d just shuffle around with a big, confused smile on his face, completely lost but somehow cheerful. Toward the end, he couldn’t get out of bed or go to the bathroom on his own. It totally sucked.

Mom was overwhelmed with caregiving and we started discussing the possibility of assisted living for dad. Then, one Monday morning, she called to tell me Dad had developed a bad cough. By that afternoon, it had worsened, and paramedics took him to the ER.

A friend of mine, who happened to be the ER doctor treating him, said that Dad had pneumonia, likely caused by aspirating food into his lungs. His body had forgotten the exact mechanics of swallowing, and he inhaled some food. She was direct with me: “It’s not likely he’ll recover. You should start making arrangements.”

Dad passed away suddenly within 48 hours. That sucked, but honestly, it felt like a blessing. Watching someone who had worked so hard his entire life, only to be robbed of retirement and meaningful time with his family. The caregiving had become overwhelming, and the financial strain of potential family bankruptcy was looming over us. It was a shit situation all around, and his passing, though devastating, brought an end to his suffering and the chaos.

What’s bizarre is that just two days before my mom called about Dad’s cough, I had a celestial experience.

I couldn’t sleep and spent a few hours in bed typing out Dad’s eulogy on my phone. I can’t explain it, but somehow, I had the intuition that the end was near.

My biggest regret is that dad and never talked openly about our relationship as father and son.

I never thanked him for working so hard for the family & teaching me critical life lessons. We didn’t have the kind of relationship where we said “I love you” or “I’m proud of you.”

I’ve made a conscious effort to change that with my boys. Emotional candor, something I wish I’d had with my dad, and something I’ll never take for granted again.

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Discussion

🫂 Alzheimer's is brutal friend, thank you for sharing that story.

Matt, I'm sorry for your loss. I'm glad you are making some changes in your relationships with your kids. This is yet another valuable lesson provided by your dad.

I can’t begin to imagine going through that. Thank you for sharing this.

Thanks for sharing. My great grandfather, grandpa and uncle have all had/have this and worked as your dad did. It’s sad to see the decline. Grandpa died in January and my uncle is completely “lost” mentally and almost physically. I don’t expect he’ll be around more than a few years.

That’s truly heartbreaking. It’s known that it can be hereditary.

Wild to think that life is made up of memories, shared moments & experiences.

But what is a life when those memories can no longer be recalled?

I also had the same kind of relationship with my dad, and lost him when he was 54 for mouth cancer. In a very sad way also I felt relief when he passed, and I was very young to deal with the pain. You will only understand your parents when you become a parent, unfortunately. Fortunately, though, we can learn from the bad relationship with our parents and become better parents ourselves.

Thanks for sharing your story, happy parenting.

True. parenting is likely the hardest job we’ll ever have as a humans.

🫂

Good that you shared

Sharing reduces the pain

Alzheimer’s sucks. Cancer too. Lost my mom to ovarian cancer at age 60. Caregiving sucks but it’s also rewarding at times. If anyone out there finds themselves as a caregiver, and isn’t sure what to do, I would be happy to send you a free digital copy of my book. It’s called the accidental caregiver’s guide. It’s a path forward for navigating healthcare and aging in place with a loved one.

Well done! finding genuine meaning in sorrow. much respect!

🫂

My priest says that someone older suffering, before they die, can be an odd sort of blessing, to the people who love them, as everyone is relieved that their suffering has ended. It's much worse, when someone dies, when they are very young and healthy.

certainly true. my grandmother passed a couple of months ago, she was almost 94.

how can one be sad about 94 years. sometimes we must simply celebrate the life and the time & energy given to the world. IMHO.

God bless you all. Everything in God's time. Thanks for sharing your story.

Beautiful read, thanks for sharing 🫂