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ahimsa
bf0dcb84b79f284b97cdd684679be31ce45da79d9dc114dfaa7bbbf5aa492315
Vegetarian, book lover๐Ÿ“š Living with ME/CFS and Dysautonomia since 1990 โ™ฟ๏ธ She/Her Please use #AltText on images/GIFs/videos โค๏ธ Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: A group of leafy green trees in a park. My posts, no boosts = https://justmytoots.com/@ahimsa_pdx@disabled.social?public_only=true #MEcfs #PwME #Dysautonomia #POTS #LongCovid

nostr:npub1exldgmt5t5fcccr0vm2rx826vtm99egsvm6hk9uxlhdg3na0xk3sc8yl94 Yeah, I didn't see that one coming, but I should have โ€ฆ

And if this were twitter, the very same bot would probably like my post, too!

This clip of Jasmine Crockett from Fox News, is fire! ๐Ÿ”ฅ

https://pdx.social/@zuul/111144852618927621

Sorry no, captions for this video. I'll try to look for a transcript online.

Thanks to nostr:npub1pd5d20sqflf4endnvvx0ttx4vgatghqu6ax6nmxnqk28s5trxrsqla2n5w for posting!

#USPol #Politics #Biden #Trump

David Tuller on Virology Blog:

"Trial By Error: An Interview with Yaleโ€™s Akiko Iwasaki"

"Akiko Iwasaki, a professor of immunobiology at the Yale School of Medicine, is a leading investigator into long Covid and has recently been tapped to lead a new Center for Infection & Immunity."

Video, 26 minutes

(no captions)

https://virology.ws/2023/09/21/trial-by-error-an-interview-with-yales-akiko-iwasaki/

#LongCovid #PASC #PostCovid #PostViral #MEcfs

Replying to 1f116427...

nostr:npub19djal9d9t0zldup256dnakx4kswlat80kvl5d8e5qcdl4t795yesjkn6qc this is so depressing to me. The first time I experienced MECFS was back in 2004, but I did get it into remission for a while. Now itโ€™s been disabling for 11 years so this is me I guess. ๐Ÿ˜ข

nostr:npub12nelzy5hsj8wd5wq5vz2cc4m9hv8ar096ru52g4kkdqm30p0dwkq9kxj50 Same. My initial onset was 1990, had ups and downs over the years (but trending downward). I finally got too sick to work in 2000 and had to go on long term disability.

nostr:npub1santejagssvugn3fcgdv9u94z6w37dukpwfwucqlcqluffw7n7uqv5vglw #JustMyToots is a tool that lets me see what I have posted without any boosts.

Sometimes I want to find a recent post that I made, but since I boost a lot of things it can be hard to find, have to scroll through a lot of posts.

Any user can opt-in to this tool. Just put a link in your bio (substitute your own user name). I added an option to show public toots only at the end of that URL.

I've attached a screenshot from the about page of justmytoots.com

1/2

"DecodeME STUDY - Between You and ME"

Blog about donating DNA to the DecodeME study, the largest study of ME patients that has ever done.

https://lizakarlewriter.wpcomstaging.com/2023/08/04/decodeme-study/

#MEcfs #LongCovid #Research #Gene #GWAS #DecodeME

"NHS told to stop blaming ME patients for being ill and improve care"

"The NHS has been told to stop dismissing and stigmatising patients with myalgic encephalomyelitis (ME) under a government plan to overhaul care for the debilitating illness.

Doctors and medical students will be offered greater training as part of a national strategy vowing to 'improve attitudes' to ME and 'trust and listen to those with personal experience'. "

https://archive.li/fjdMi

#MEcfs #PwME #NHS

Comic from The Nib:

"Welcome to the Disabled Future"

by Rachel Litchman

https://thenib.com/welcome-to-the-disabled-future/

(I don't think it has image description - I'll try to remember to come back later and do one)

nostr:npub1xrrt2jpk5j7c0k5hfjd54tte823qh823gmzjfh99qkhrr0kdy5asm9nftg

The disabled community overall is much smaller here. Just to name a few I miss seeing posts by Alice Wong, Haben Girma, Rebecca Cokley.

There are fewer ME/CFS researchers and advocacy groups. I'm happy that nostr:npub1pmxc6x4m8cf2gemjktdhu7vmf87kaprlq8t88fm2n25pzyp5sf9qdzexkq and nostr:npub1k2q3ca5zs84jguvceu5ev6erxt5a0gtu4mjhzrgqkjcgxtpqfu6ql8pyq0 are here but I wish there were more.

And I don't think there are any Dysautonomia or POTS groups here.

I used to follow my two senators, congressional representative, governor, etc.

I also miss following my local library.

There are usually (always?) more than two sides to an issue.

Framing an issue as "it's either X or it's Y!" is generally an oversimplification. I'm surprised by how often folks suggest these false dichotomies.

nostr:npub1d0spkr0ktwcasanl9jmyx8vtm03tugv7a89f2u367k6jeul7pvqspfegda I get the general idea. There were some Republicans who weren't actively trying to do a coup. Many of them resisted following orders from the former prez.

But the headline makes it sound like they were effing heroes.

Idea: User blocking for op-ed authors so you don't even have to read these ridiculous headlines ๐Ÿ™„

(h/t to nostr:npub1d0spkr0ktwcasanl9jmyx8vtm03tugv7a89f2u367k6jeul7pvqspfegda for the screenshot)