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ahimsa
bf0dcb84b79f284b97cdd684679be31ce45da79d9dc114dfaa7bbbf5aa492315
Vegetarian, book lover📚 Living with ME/CFS and Dysautonomia since 1990 ♿️ She/Her Please use #AltText on images/GIFs/videos ❤️ Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: A group of leafy green trees in a park. My posts, no boosts = https://justmytoots.com/@ahimsa_pdx@disabled.social?public_only=true #MEcfs #PwME #Dysautonomia #POTS #LongCovid

nostr:npub19djal9d9t0zldup256dnakx4kswlat80kvl5d8e5qcdl4t795yesjkn6qc but we aren't talking about that, aren't we?

it would mean USGOV has known for DECADES that the #flu was not only killing hundreds of thousands of people that would not have died had they had free, accessible health care.

it would mean that every POTUS since Reagan would have to admit MILLIONS have not only been maimed with chronic diseases but killed with illnesses --especially cardiovascular diseases-- by a #LongFlu that is absolutely the "precedent" to #LongCOVID

nostr:npub1swyxvkhew2qcjpgmsf7c4salsxsedx4veavatjd5yzhxhmtk58aq54snpj Yep. So many years of neglect. No treatments due to vastly underfunded research.

Many viruses can trigger long term illness, COVID, flu, SARS, EBV, etc.

US government ignored the warnings from ME/CFS patients and patient advocacy groups that the pandemic was going to trigger many more cases of ME/CFS, POTS, etc. Several studies show that roughly half of Long Covid cases meet ME/CFS diagnostic criteria.

https://www.meaction.net/stoprestpace/

#COVID #LongCovid #MEcfs #POTS #Dysautonomia

Replying to bd6beeed...

nostr:npub1nc4xf0slcskxzmmy2my0nrum3ch9feg7w3h6ymfgxywcrt824rkqef2ry5

Do people randomly grab the handles of someone's wheelchair without asking first?.... Oof

#disability #accessibility

nostr:npub1cruumka4f5c4kq9v78kf06s8l098z8jl9ftzxnu92dm3z8svn94q8mavww nostr:npub1nc4xf0slcskxzmmy2my0nrum3ch9feg7w3h6ymfgxywcrt824rkqef2ry5 I am only an occasional wheelchair user, so it's never happened to me, but I have even seen folks try to use handles to hang their bags/purses! I can't remember exactly when it happened (bad memory) but it was on some form mass transit - bus or train.

Treat the mobility device (walker, wheelchair, cane, crutches) as an extension of the person's body. Don't touch without asking first. You could cause an injury.

nostr:npub1swyxvkhew2qcjpgmsf7c4salsxsedx4veavatjd5yzhxhmtk58aq54snpj Post viral illness after flu ("long flu") would definitely include ME/CFS (and also maybe POTS, Fibro, and other illnesses).

Research has been done on ME/CFS triggered by flu virus, as well as other viruses like SARS or EBV.

Here's a 2015 study about H1N1 and "CFS/ME" (sic)

"Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine"

https://pubmed.ncbi.nlm.nih.gov/26475444/

nostr:npub1s4pjt4tyvvwfu7znws9zuw0cxnkn6s4vfl7al25gzzdhq3md5mlqt5zzn6 I heard this episode, even posted it about it here. It's a good one!

But I usually access Throughline either via NPR website (https://www.npr.org/transcripts/1155489235) so I can read the transcript while listening.

I had no idea Throughline ever posted episodes on YouTube.

#History #USHistory #Whiteness #Asian #SouthAsian #Desi #India

"Meals skipped, lights shut off: Long COVID linked to severe financial strains, researchers say"

"Many people with long COVID lack paid sick leave and struggle to access safety-net programs"

"One in 10 adults with long COVID say they stopped working because of their symptoms…"

#LongCovid #Disability #ChronicIllness

A recording of this webinar is now available on YouTube:

https://www.youtube.com/watch?v=_9cujWQgi5g

#Dysautonomia #POTS #MEcfs #LongCovid #ChronicIllness #OrthostaticIntolerance

nostr:npub1lrp758re9dvkys3hxvkt3axu0w4s6krt72m8d2nzyl6pf29yrk8qvsn7q6

"Until you see someone in scrubs wearing a mask, you don't need to worry." 😱

I'm sure they meant medical professionals, but what's with the weird fixation on wearing scrubs?

Most of employees in my doctor's office still wear masks even though the mandate is gone. So I actually have seen "someone in scrubs wearing a mask" recently.

My doctor was also masked, but she wasn't wearing scrubs. 😁