Nostr

Yeah I had to self-advocate and refer to obgyn. Luckily I have a PPO.

Typically takes _years_ to get formal diagnosis.

There are a few uncommon but far from rare diseases out there that aren’t well known amongst physicians. I’ve seen people put on psychiatric meds for esophageal disorders that take 2 seconds to diagnose on fluoroscopic esophagram.

Reply to this note

Please Login to reply.

Discussion

Noshole 9mo ago

Yup. In that regard, I’m lucky. I had a family history of a lot of endo so I was pretty sure that’s what it was. My doctor disagreed because most of my pain is in my back, but then my OBGYN said it made sense given my uterus is flipped backwards 😂🤷‍♀️

Dr. Bitcoin, MD 9mo ago

Usually knowing is half the battle, but in this case it’s rarely the key to eliminating the problem.

Noshole 9mo ago

Yeah. Really all that did was put an ICD code on my charts 😂