Today I do not feel I am anything more than my illness and my pain. Today, it defines me. I hate these days.
Discussion
I’m 😢 you are 🤒
💪 you will get through this 🫂
Stop being a pussy and pull yourself up by the balls
🫂💜
What's your illness?
The “fuck knows what is wrong with them illness” they call it Fibromyalgia, but it’s a catch all umbrella term. I can fake it on most days, some days I really do not want to anymore. 🫂💜
Oh I'm sorry. 😰
I have an aunt that has that and lupus. I guess sometimes it's a package deal. If i remember correctly it's more of a neurological disorder where the brain sends out too many signals and it's interpreted by pain. It's hard to discover, the common method is blood analysis, however it's basically like if you're not having a flair up at the time of the test it's less detectable. At least that's what I've heard doctors say. (Not verbatim)
I know that shit sucks. 🫂🫂🫂
Brain talk is mostly bullshit aimed at pumping us full of pharma junk, this is proven in some research. It gets worse down that road (I wanted to jump out of the window, feeling stopped once I stopped taking the drug). They can’t fix you, so it must be your brain.
100% of fibro sufferer have SIBO. (A gut breath test will show abnormal levels of hydrogen after consuming sugar) Yet, this doesn’t explain all the symptoms. I am waiting for a 2 weeks window without obligations to try to reduce it.
The problem is maintaining hope while life runs away from you, or worse keeps punching you in the face. Life is a bitch and you’re not allowed to die (I am a dad).
What kind of symptoms do you have.
I know how you feel, minus the dad part.
Also, plz don't jump out of a window 🥺
No worries. I like being a father, even if in a limited way, no jumping out of the window. Most of my energy goes to being a dad, I try to budget my energy around it. (I only have him at home 50% of the time).
When I wrote this last night the pain was getting to my arms and even holding a tablet was too much. Early morning and end of day are the toughest. I have pain in all 4 quadrants, tired pretty much all the time, gut issues, brain fog, sudden bouts of anxiety and phases where I mostly try to keep depression at bay.
I can tell you my beautiful friend is that as with all feelings allow them to come when they do and then allow them to go, knowing that as everything does this too shall pass.
Don’t be too hard on yourself, life is tough at times however there are many beautiful blessings that keep us grateful even if we don’t feel them at the time 💜🫂
Pain and suffering are separate things. I can manage the suffering (sometimes by using communication to exorcise it), the pain will do its thing as it always did. I find comfort in realism, it can be a short lived nasty feeling when you see life as it is, but on the long run it helps me the most. It is what it is. All the emotions are pure and good (even the so called negative ones), the key is to remain balanced. Ignoring an emotion only makes it louder and eventually it rules you instead of simply informing you (talking from experience) So thank you for allowing me to communicate, to exorcise, to be seen and exist, as is, without the mask. 🫂💜
Pain and suffering are separate things. I can manage the suffering (sometimes by using communication to exorcise it), the pain will do its thing as it always did. I find comfort in realism, it can be a short lived nasty feeling when you see life as it is, but on the long run it helps me the most. It is what it is. All the emotions are pure and good (even the so called negative ones), the key is to remain balanced. Ignoring an emotion only makes it louder and eventually it rules you instead of simply informing you (talking from experience) So thank you for allowing me to communicate, to exorcise, to be seen and exist, as is, without the mask. 🫂💜
I’m sorry. The fibromyalgia sounds debilitating. This Huberman lab ep. is my current understanding. I’m sure you’ve investigated far more than I can fathom. But I’d be remiss not to pass it along. It’s a riveting episode but 59 minutes in he discusses fibromyalgia in-depth, and several promising treatments (which you may already be familiar with). It sounds that they’ve isolated some areas associated in the glia toll4 receptor. I hope you find something useful from this or find a another path to relief. 🫂
Please forgive me if this was too forward.
I’ve been there. I hate those days too. If you want to talk I’m here. Seriously I’m currently recovering from surgery I’ve got loads of time.
🙏 thank you
I hope you’re recovery is going well. Today I have one of those days where I have to push through…
Those days are tough but then along comes a day that shows you why it was worth it. I hope the worst of the rough day has passed.
