Anyone who thinks autism is a new thing with rising rates in society should go to a #hamradio meetup. Room full of retired old dudes hyper fixated on a subject for 40 plus years with no social skills. They just weren't diagnosing those guys back then. Go hit the model train and ham radio communities with tests if you want to see a real spike in autism diagnosis. You'll normal out the age distribution curve real quick.

I've worked around and I know how to spot people who are autistic because I am one. I can promise you 90%+ of the internet and cell phone infrastructure you pass your autism theories around on is designed, built, and maintained by autistic people. If we're the disabled ones why aren't you neurotypicals the ones building that shit? Every story I hear about software devs says they are right there with the hardware infrastructure guys if not beating our rates.

Extreme non verbal cases are sad but they are far from the norm. Plenty of not autistic people are stupid as hell too.

I'm serious when I say that functional autistic people don't believe this because we beat neurotypicals at intuitive probability, math, and pattern matching. I can see plain as day his "spike in cases" is really a spike in diagnosis then move on with my life.

I honestly think some of you neurotypicals who buy this theory spend more time worried about the downsides of autism than I do as an autistic person living in it.

Don't make me start reframing and talking about disability accommodations neurotypicals need to function in life like calculators for math most autistic adults could do in their sleep.

Reply to this note

Please Login to reply.

Discussion

Good points but Is it true with more severe symptoms unable to function on their own?

Non functional autism cases are rare. All the data RFK uses lumps in people you might not even think of as a little weird with non verbal people who need a full time caretaker.

Autism as it stands is very poorly defined and categorized. There are tons of symptoms and every autistic person has a unique severity for each symptom. Should someone perfectly capable of living a normal life be considered the same as someone non verbal and needs constant care? RFK thinks so. He said we'll never pay taxes or have relationships or acheive anything for society. Meanwhile I have a documented genius IQ, graduate degree, full time job, and a family. Birds of a feather flock together, and I don't know a single autistic person who takes RFKs stance on autism seriously.

From my perspective, the biggest issue in the conversation is that all of the professional material about autism is written by neurotypical people. For a disorder that often makes it difficult to determine your own internal emotional state, a bunch of people who have never felt what you feel guessing and then telling you that their guess is truth only makes it harder. The Internet is helping here with people connecting and talking about their experiences, but none of that is making it into professional diagnostic criteria or instruction for how to help people deal with their symptoms.

Most functional autistic people are very smart and capable of learning new things very quickly compared to neurotypical people. Hyper-focus is a symptom for autism just like adhd. We struggle to be taken seriously because of social skills lagging, people promote people who make them feel comfortable. This is a huge opportunity of untapped resources that is being wasted. So much talent wasted just among my social circle. I sort of lucked into a role that uses my differences wisely and allows me to contribute more than I could if I wasn't autistic. That is very rare. That is what we should really be talking about when we talk about autism.

Society benefits greatly from autistic people. I think there's a parallel with the need for privacy tech. Norms change in first private, not public

Society if .1% more of "social butterflies" were neuro-atypical

Thanks for sharing

Listening to the autists on 80m also suggests correlation with colorectal abnormalities.

Funny joke, but also actually true. Autistic people have much higher rates of food allergies than the general public. Especially non IGE type allergies which have very delayed reactions and the primary symptoms are GI related. Non ige allergies don't show up on allergy pin prick or blood tests. They are often undiagnosed for years or misdiagnosed as IBS, Crohn's or other GI disorders.

There is a question of correlation or causation with the allergies. My autism symptoms are worse if I've made a mistake with my food, which I think causes that question. My autism symptoms never go away no matter how clean I eat so I don't think the allergy is the cause. My guess is an unknown single mechanism is behind both. Traditional medicine is happy to label us as genetically inferior and just write it off like that rather than look for a causal link. I'm not inferior, I'm just different. Better at some things and worse at others than an average neurotypical.

As an aside, I only typically here people use "autists" if they are an asshole. I'll give you the benefit of the doubt for now.

Psychology has made such a mess of autism and ADHD diagnosis and clearly failed both groups. Most people just call themselves neurodivergent now. That doesn't come with the baggage of symptom assumptions that are false because we vary so much. You are forced to get to know the individual instead. Almost like we're regular humans that way.

I did not know about that correlation, but the gears are turning now. It all makes a lot of sense.

Is autist a dirty word? I'm probably an asshole, but not in that particular area. I'd consider myself one of those 80m guys in any case.

Your description of yourself is also frighteningly similar to my situation. I don't know if it would be beneficial to see a doctor about it, though.

My experience is that the doctors were useless for a non IGE allergy. In the end I tested and diagnosed myself. I told them and they just said "OK" and added it to my chart based only on I figured it out by elimination diet and no other questions.

Here is what they will tell you to do, do it yourself and save the doctor bill. The list of common allergens is the same for both types. Start at the top of the list and do strict elimination diets for a minimum of a week for each food. Read every food label, some are easier to avoid than others. Research that allergy before the test so you know what you are looking at. For example I got tested for that lonestar tick meat allergy because I had a reaction to pepperoni. Turns out the lactic acid starter culture in some cured meats is derived from milk. Keep a food and symptom journal. If you are systematic you can do this by yourself. Simple but maybe not easy.

Oh, I meant the autism or ADHD part. So far, the other stuff is okay. I just wonder if there's any reason to get myself "labeled" with some kind of neurodivergence.

Honestly, not really unless you need the legal protections for some reason. Most people who decide to share find that most people's response is "I already knew"

What is useful about knowing without official diagnosis is the ability to study up on tips and tricks from other people for making adjustments in life. RAADS-R for autism is clinically validated and free online so you can know without formal diagnosis. That way you don't end up being one of those fake disorder cringe people.

I'll check that out. The hyper-focus thing is a major problem sometimes. It gets better with alcohol, but I don't need to add alcoholism to the stack. I'm just glad I married a patient woman...

Alcohol and nicotine both work because there is a dopamine regulation issue with autism and ADHD. External dopamine regulation by drugs, same as why Adderall is basically speed but it works. I used alcohol and nicotine heavily before but now I don't even do caffeine and maybe a beer a week. It is possible to learn to control your focus without drugs.

There are tons of non drug dopamine management tricks you can play. Think of it as the novelty hormone. Suddenly inability to focus on boring things with hyperfocus on new and interesting makes total sense. You can mess with the novelty in your environment to get through otherwise boring things.

For work I do Pomodoro and I change my work environment every sprint. Music or not, now different music, balance board, standing mat, stool, treadmill. Anything to change my environment for novelty while doing the same boring computer work. Breaks are always off the computer and phone. Phone or personal browsing simply isn't different enough for your brain to feel the break as different from the task. Do some mind body connection movements or pick a lock instead.

I also use the timer to break my hyperfocus stretches on purpose. I used to let them ride but I'd get one a day maybe. Cutting them off plus environment management gives me more total focus time at my disposal. It also helps me have more control over when I focus throughout the day. Kind of like making a roller coaster less extreme but a longer ride.

You're freaking me out now. It's like you're watching me work, right down to the balance board. 😂

Crap, I guess I'm on the right track at least. I've discovered most of these things on my own through trial and error. I'll have to try limiting the "fun" stuff time, also. Never thought about drawing that out rather than letting it run wild after the work is done. It also didn't occur to me that I probably like locks and soldering things so much because they're so different from the "boring" computer work. I also get more productive if I swap keyboards or pens.

This is all very interesting...

I started doing that because it feels like that level of focus is finite and responds a bit like weight lifting. If I let myself go until I naturally stop the recovery period is much longer.

That makes sense. Geez...I did the test and scored 161. Kind of tough because it forces a yes/no when there's probably some grey area. I took it again and went with what I thought was the more "normal" answer and scored 143. So now I think I have no idea what the hell anyone else would answer. 😂 I don't even know what the "right" answer set would be to score as neurotypical. I couldn't even game it to get a lower score without outright lying.

Well on the plus side, nothing actually changed except that now you know.

I got a 208 first time I took that. Some gray in a few questions but certainly no way I'm getting out of it.

Results are coming in from my buddies and they are half my score.

nostr:nprofile1qqszd44fgen4ucpl3hjt7muuaazzqdahp3lwu9c07phdweelcdxf3ugpz4mhxue69uhkyetkduhxummnw3erztnrdakszxnhwden5te0wfjkccte9enk2arpd338jtnrdakj7a33qyxhwumn8ghj7mn0wvhxcmmvhj9400 called it the other day, so she has validation now. 😂😂

Thank you for this enlightening journey, Dr. Cypher.