NIP-82 seems like a big deal: "The idea is to decentralize medical information. Today medical data is either in the hands of the government or in the hands of gigantic private enterprises. Patients don't have any access, or control, over their data. That has to change. And Nostr can make it happen.”
Discussion
Thanks for supporting my friend Vitor, he is very nice guy 😊
I’d prefer to own my medical records than trust these so called “health care” corporations. My digital data should be private and in my control.
After Finance & Communication, Now it's health. Very great initiative started by Vitor
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Sorry to be the bad guy here. We need to keep nostr simple. This simplicity got me here in the today's over engineered world.
idk man have we lost the plot? does everything need to be a nip?
this makes perfect sense to be a nip, what do you mean?
where do we draw the line on what should and should not be a nip? when should something just be app specific
https://github.com/nostr-protocol/nips/pull/357#pullrequestreview-1336138468
A nip is just a way for multiple implementations building stuff on nostr to coordinate. Zaps for example are just data that are app specific, I don’t see why medical records are any different.
I think a lot can be built without a NIP. I am trying to build this and I don’t think I need any app specific NIP
Perhaps we need a more systematic way to assign ‘kind’ IDs tho?
Would be nice if we can get push notification from relays tho. But that is not app specific
I agree with Will here, I mean we are talking about health & this is very essential.
Finance, Communication & Health, Love it. 🤌
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That’s very neat.
Won't happen realistically. Can't even buy a coffee with crypto in San Francisco. Imagine convincing hospitals and doctors to trust in this system. Apple can't even get them on board with their own health sharing implementation.
Shitcoiners: to bring fairness to traditional systems we have to move these systems to our “revolutionary” centralised blockchains!
Nostriches: #[0]
#[2] is funding legal/lobbying fights over this, right??
I think if relays that don't want to deal with the regulations that come with medical data just blacklist that kind it should isolated them from that. Of course that assumes the courts and government act rationally so maybe a bad assumption.
You should be able to host your own medical data, and allow your medical professionals to access it via your relay, but it would just be redundancy, if you can even find a someone to accept it, because they have their own compliance requirements.
Right so the relays that want to take that risk and liability would allow that kind other relays would not. Isolating themselves from compliance issues
Nostr is pumpin'.
#Bitcoin too.
A match made in #[1]'s heaven.
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Notes and other stuff 🤔
hi Will, what are your thoughts on a "youtube" using lightning? content creators getting paid immediately sats when someone watches their vid. sats paid by the ads before the vid. Realtime finances.
Ok, i did an extensive investigation lol 😂
Why nobody told me?
#[1] the name of the original Nostr protocol creator means in Romanian...
FIAT ROBERY!!! FIAT JAF is in fuckin' 🇷🇴 FIAT ROBERY!
Nice 😏
This note should not be here, strange, it landed somewhere than where was intended. Amethyst had a glitch...
Ok, i did an extensive investigation lol 😂
Why nobody told me?
#[1] the name of the original Nostr protocol creator means in Romanian...
FIAT ROBERY!!! FIAT JAF is in fuckin' 🇷🇴 FIAT ROBERY!
Nice 😏
Noted
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This is a great idea
I wholeheartedly agree. I worked with one of the founders of the bioelectric sciences and biomedical engineering (rest his soul) and it was his passion to one day see medical records become digitized but also permit ownership and control solely by the patient. I see nostr as a good foundation for such a system. For example, the doctor's office might run a relay and the patient could consume the information from the clinic then securely share it with other doctors by adding the new clinic's public key to the list of recipients.
Most people don't understand HIPPA and are over-protective of patient data in my opinion. For those handling other people's medical data, that's absolutely necessary but so far as I understand it the patient always retains the right to decide who is allowed access and by what means. Even though it may be insecure, be it fax, email or encrypted zip file on a thumb drive, the patient could insist on these communication media. The wrinkle is when a clinic recommends one or another means, that's when it becomes a liability. Most clinics insist on patients logging into their portal to access their data, but that level of security is a clinic policy and not necessarily required by HIPPA is the patient requests the data is shared via email.
This will fundamentally change the process of collecting data for research
I’ve always been interested and curious why people are not privy to their own personal information about their own health! Sick world we are living in.
People are taking notice of your post.
Added to the https://member.cash/hot feed
La patience est un chemin d'or.
I was waiting for this to start. Thank you
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It was your father, your sister, your mother. It was your brother, your aunt. It was your lover and your attorney. It was all of us. #[0] #[2]
interesting🧐
A platform built on nostr and zaps for peer reviewing scientific studies and rank them in function of the amount they collect in zaps+ the amount collected by the reviewers+ some kinds of reputation based on zapped for authors/reviewers would be greatly needed.
The actual scientific journals are corrupted by fiat money nowadays this needs to change.
You should add a big bounty for that too #[2] IMO
Придется сделать это!)))
This seems like an absolutely dangerous idea without a proper key management/rotation scheme.
Nostr isn't about
Ah I give up
Vitor talks about his ideas regarding this nip on this podcast 👀👀
This is escalating quickly
Gheez , have you ever seen the printed out notes from an EMR,,. Good lord it’s a lot .. I got stuck in the hospital , they finally figured out what was wrong from running a bunch of tests , they couldn’t do the surgery there because they didn’t have the bypass machines and no one in my city had done it anyways , not in my network , I took an ambulance up to Dallas , gave them a paper copy and the tests results on a disc ,,, during staff rotation, they lost them ,, they literally tried to make me do another duel catherization of my heart ,,, would have been nice if I could have juts uploaded my
Notes into thier system from my thumb drive or nostr ID or something
The Dept of Veteran Affairs maintains all my health records. Let me tell you, they hire the best IT professionals ever to secure their networks. Very professional! I feel so secure!
One day I was sitting in the hospital waiting room, and I scanned the wifi network as I often do when sitting in waiting rooms. I found a network switch that was exposed via telnet with a default username/password for the admin panel.
This level of sheer laziness could not go unanswered, so I changed the password and renamed the network switch "we suck at IT". A while later in the day I passed a gentleman in the hallway who was carrying a network switch under his arm, and had a look of total consternation on his face.
If you’re looking for a law firm to have this vetted I would recommend Dunning and Krueger
shocked
As a medical physician I see a lot of potential in such a solution.