Does anyone who follows me know anything about Mast Cell Activation Syndrome? I've got a friend in a vague, multi-symptom health crisis and he suspects this might be what's going on, but he's not sure and he's desperate for help.
Putting this out there to help widen his net. I can relay his symptoms and history of seeing doctors (he's in Sweden) recently and everything - but so far he's struck out hard on any good leads, even after many doctors, super strict diet and other interventions.
He's mainly interested in finding a physician(s), so that's the best way you could help, but any other ideas, advice or wild hypotheses are invited, also. He's some information he shared (designed to be given to an AI, but works for people, too):
- Suspected MCAS with histamine intolerance, SIBO/IMO that was successfully treated, brainfog, aphasia, fragmented sleep, cardiac symptoms, anemia relapse (128→166→130; before gut treatment, during gut treatment, and then a few months later, after a cold), possible microclotting
- Swedish public healthcare is too slow and won't do comprehensive functional testing
- Budget not a constraint (willing to spend €200k if needed, probably more)
- Had covid 3-7 months before first symptoms started appearing, 9 months before they got severe.
- Need someone who won't dismiss complexity or get ideologically rigid about "natural only" OR "conventional only"
