$4 drug at Walmart fixed it.
https://www.nejm.org/doi/full/10.1056/NEJMc0708819
I had to take her to Chicago after the clinic wouldnāt treat her with what was then new medicine.
But as this $4 drug destroyed many careers in pediatric ophthalmology & neuro-ophthalmology, they had to invent some bullshit syndrome just in time to justify almost $100,000 in cardiology and radiology imaging to compensate themselves for lost surgery revenue.
OMG insane š
Everything relating to the modern healthcare system scares me so much. Sad to say that my default is not to trust a single word that any healthcare professional says until they prove to me that they are actually logically discerning what is best for patients. So much corruption, and often it seems there are many good individuals that are stuck in a backwards system where they donāt realize how much they are impeding real health advice and treatments
Welcome to medicine. Where money cloud judgements & institutions
A decent physician should be able to communicate the rationale and level of certainty for any diagnosis & treatment regimen.
For my daughter, the recommendation was intralesional vincristine injectionā¦the rationale for rejecting propranolol was only 2 years of global experience with the drugā¦we thanked them for their opinion and left for an institution with better thoughtās & recommendationsā¦albeit they fleeced us.
Luckily you understood it all, to the normal plebs like us..what the hell do we know!
The tought of your child requiring Ā«Ā Intralesional vincristineĀ Ā» must have cause many a nightmare. šš»
Well, it was the small chance of bilateral blindness that was terrifying.
We were willing to tell the famous docs that we were going to a less known childrenās hospital for newer and therefore less well tested care. But the totally obvious superiority of propranolol clearly didnāt have double blind placebo controlled proofā¦a good example of āproofā not being necessary when obvious.
OMG that must have been so difficult! hope your baby is ok now šš»
She is fine. $100,000 in medical charges, most of which I realize now was total bullshit, which cost me just shy of $15,000 due to in and out of network charges for three insurance plan-years in an 8 month span (ā¦doctor years start July 1 and generally donāt do internship at the same institution as radiology residency)ā¦
Today sheās beautiful, sees great from both eyes, and just turned 12 on a family trip to Israel this past summer.
Iād be about 100 btc richer had it not been for being fleeced by my future peers as a poor resident, but I wasnāt so stupid as to part with all my mined coinā¦
