I have a retroverted uterus, so mine grows on my bladder 😫

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Ugh. It’s vexing to us in radiology because these things are flat and essentially invisible basically all the time on imaging. But super easy to see with your eyeballs if you look inside because of the color. Not that cutting everything out is some sort of panacea though.

Complex issue without easy answers. You have my sympathy.

As a curious thing to know, the lining of the fallopian tubes and the muscle of the uterine wall can also metastasize in a non-cancerous fashion like endometrial implants do…called endosalpingiosis and benign metastasizing uterine fibroids. I find it interesting that the organ responsible for permitting babies, something that the body would otherwise see as a parasite or something like an organ transplant, is also the tissue that sometimes shows up in unexpected places.

Yup. Unfortunately, they have to slice me open to find it 😂 didn’t show up on CT or ultrasound

Typical. Our main role is to make sure doctors think of endometriosis in the over-imaged patient or suggest the diagnosis if they unknowingly give a good history for it.

Yeah I had to self-advocate and refer to obgyn. Luckily I have a PPO.

Typically takes _years_ to get formal diagnosis.

There are a few uncommon but far from rare diseases out there that aren’t well known amongst physicians. I’ve seen people put on psychiatric meds for esophageal disorders that take 2 seconds to diagnose on fluoroscopic esophagram.

Yup. In that regard, I’m lucky. I had a family history of a lot of endo so I was pretty sure that’s what it was. My doctor disagreed because most of my pain is in my back, but then my OBGYN said it made sense given my uterus is flipped backwards 😂🤷‍♀️

Usually knowing is half the battle, but in this case it’s rarely the key to eliminating the problem.

Yeah. Really all that did was put an ICD code on my charts 😂