It is actually metastatic deposits of non-cancerous tissue, specifically, the tissue responsible for menstruation and allowing embryos to implant. These metastases can happen anywhere, but mostly in the pelvis, sometimes abdomen, and less commonly pleura where monthly lung collapse is the key clinical finding.
Discussion
I have a retroverted uterus, so mine grows on my bladder 😫
Ugh. It’s vexing to us in radiology because these things are flat and essentially invisible basically all the time on imaging. But super easy to see with your eyeballs if you look inside because of the color. Not that cutting everything out is some sort of panacea though.
Complex issue without easy answers. You have my sympathy.
As a curious thing to know, the lining of the fallopian tubes and the muscle of the uterine wall can also metastasize in a non-cancerous fashion like endometrial implants do…called endosalpingiosis and benign metastasizing uterine fibroids. I find it interesting that the organ responsible for permitting babies, something that the body would otherwise see as a parasite or something like an organ transplant, is also the tissue that sometimes shows up in unexpected places.
Yup. Unfortunately, they have to slice me open to find it 😂 didn’t show up on CT or ultrasound
Typical. Our main role is to make sure doctors think of endometriosis in the over-imaged patient or suggest the diagnosis if they unknowingly give a good history for it.
Yeah I had to self-advocate and refer to obgyn. Luckily I have a PPO.
Typically takes _years_ to get formal diagnosis.
There are a few uncommon but far from rare diseases out there that aren’t well known amongst physicians. I’ve seen people put on psychiatric meds for esophageal disorders that take 2 seconds to diagnose on fluoroscopic esophagram.
Yup. In that regard, I’m lucky. I had a family history of a lot of endo so I was pretty sure that’s what it was. My doctor disagreed because most of my pain is in my back, but then my OBGYN said it made sense given my uterus is flipped backwards 😂🤷♀️
Yes.
But why? Plastic? Poisonous food? Leftover synthetic birth control in the drinking water? Vaccines?
All of these correlate with a rise in endometriosis.
That’s exactly what they need to be researching, but it’s severely underfunded
Yes. That's all too true.
MIT just got $20M for Center for Gynecologic Research. It’s a lot for one lab. But the more geniuses working on stuff, the higher the chance of learning stuff.
I pray those nerds figure it out 😂
Same. Doctors aren’t super helpful in this area.
These are all hypotheses people can pay to have investigated.
Honestly this is a tough situation. I agree that all of what you just said plays an important role. The best solution nostr:nprofile1qyghwumn8ghj7mn0wd68ytnhd9hx2tcpzpmhxue69uhk2tnwdaejumr0dshszythwden5te0dehhxarj9ekxzmny9uq35amnwvaz7tmjv4kxz7fwdehhxarjvd5x2cmt9ekk2tcpr9mhxue69uhhyetvv9ujuumwdae8gtnnda3kjctv9uqsuamnwvaz7tmwdaejumr0dshsz8thwden5te0dehhxarj9e3xjarrda5kuetj9eek7cmfv9kz7qgswaehxw309ahx7um5wghx6mmd9uq3vamnwvaz7tm9v3jkutnwdaehgu3wd3skuep0qyd8wumn8ghj7un9d3shjtn8v46xzmrz0yhxxmmd9amrzqpqymt2j3n8tesrlr0yhaheem6yyqmmwrr7actslurw6annls6vnrcszahg88 is to remove yourself from the potential environmental factors completely.
Detox the body and reset the immune system. I have gone into this somewhat before, but i believe it was a TLDR situation for you, because there was no response. So I will summarize.
Step 1) Move out of so-cal. Find a farm deep out in nature with its own high quality water supply. Mountain spring water that is naturally alkaline is the best for the body.
Step 2) Go on the Gaps diet protocol. Follow it strictly. Detoxify the body by destroying the bad bacteria in your gut. Repopulate it with pro-biotics.
Step 3) Do your best to find a peaceful state of mind. Reduce your stress levels. Get recentered out in nature. Get lost in your artistic side. Rediscover your true self.
I knew someone personally who did this. She could not get pregnant for over a decade. Had constant ovarian cysts and painful menstral cycles. Once she did these steps the ovarian cysts stopped and menstral cycles were less painful. Her reproductive system healed itself. She finally got prengant and had a wonderful healthy baby when she was almost 40.
I know your condition is different, but I truly believe in my heart and soul this is what is required for you to become fully healed and start a family with nostr:nprofile1qyd8wumn8ghj7ctjwshxummnw3exvun9v94hxtnrdakj7qgwwaehxw309ahx7uewd3hkctcpzemhxue69uhhg6t8wvhxummnw3erztnrdakj7qgkwaehxw309a3x2an09ehx7um5wgcjucm0d5hsz9mhwden5te0wfjkccte9ehx7um5wghxyctwvshsz9thwden5te0wfjkccte9ejxzmt4wvhxjme0qyt8wumn8ghj7un9d3shjtnrda5kummn9e5k7tcpzemhxue69uhkg6t5w3hjuur4vgh8yetvv9uj7qg6waehxw309ashyapwdehhxarjveex2cttwvhxxmmd9uq3jamnwvaz7tmpv5h8qatjwpkx2un9d3shjtnrdakj7qpq2r0yjt8723ey2r035qtklhmdj90f0j6an7xnan8005jl7z5gw80q30r9qr
Yeah. Getting pregnant is the thing that helps most women, although with endo it’s much harder to do. Can’t move out of SoCal yet